This post will be a short one, just an update for those who have reached out over the past few months to check on me. After ruling out several other possibilities and testing positive for lupus on 4 different occasions, my Dr. gave me an answer, and a name for my misery.
Lupus- and it sure wasn’t what I wanted or expected to hear. But then again I guess I really didn’t know what to expect. So now I know what I’m up against and can start my fight to beat it.
What else….more Dr’s of course!! I am so tired of Dr’s and Dr bills I could scream. For now I will definitely keep going and hope treatments (which are very limited) will ease the symptoms.
There unfortunately is no cure, anti- inflammatory drugs and steroids are supposed to help. I have been on steroids more than off in the last 5 months. Swelling and weight gain from the steroids brings on a whole other list of issues to keep an eye on.
My dear friend bought me a book on lupus, which I am very grateful for. I’m reading and educating myself on foods, vitamins and supplements that should help with symptoms.
A Day In My Life
Needless to say the past 5 months have not been pleasant. Not that I haven’t had any good days because there have been a few.
How lupus has changed my entire life:
- My entire body aches from morning till night
- Severe headaches daily blurry vision
- Constant dizziness and ringing in the ears
- Recurring sinus infections,bronchitis,tonsillitis,ear infections
- Exhaustion, I could literally stay in bed all the time,and there are days I don’t get up
- Recurring gastrointestinal issues
- Depression, sadness, anger, tears, fear,anxiety
- And a whole list of random symptoms that pop up now and again
I never really know how to answer when someone asks how I am. I usually say I’m OK. I can’t say I’m good, great or fabulous because I’m not. On the other hand I also don’t want to be the person constantly saying I’m miserable.
There are people with far worse symptoms, far worse illnesses and far worse pain. As hard as I try to remind myself of this, there are moments I just can’t.
And So I Start A New Journey
As I said I’m keeping this short. Lupus is just another obstacle in my journey. With the love of God, my family and friends I’ll get through it and survive it. I will find a way to still be able to enjoy the little things in life. Because after all the little things are really the important things.
If you know someone with lupus keep in mind every day is a struggle. So if they need to sleep the day away,let them. If they need to cry,yell, or scream, let them.
Have A Blessed Day, Myla